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Bryan Hoben shares a cuddle with his son Forest while social distancing at home during the coronavirus pandemic in the Hudson Valley, New York. Forest and Lotus Hoben, ages 10 and 6, were adopted from China and have albinism, a rare group of genetic disorders that cause the skin, hair, or eyes to have little or no color. Albinism is also associated with vision problems. According to the National Organization for Albinism and Hypopigmentation, about 1 in 18,000 to 20,000 people in the United States have a form of albinism.

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060420_Sinclair_COVIDBW_014.JPG
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Stephanie Sinclair
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stephaniesinclair.com
Bryan Hoben shares a cuddle with his son Forest while social distancing at home during the coronavirus pandemic in the Hudson Valley, New York. Forest and Lotus Hoben, ages 10 and 6, were adopted from China and have albinism, a rare group of genetic disorders that cause the skin, hair, or eyes to have little or no color. Albinism is also associated with vision problems. According to the National Organization for Albinism and Hypopigmentation, about 1 in 18,000 to 20,000 people in the United States have a form of albinism.