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Albinism in Tanzania

18 images Created 13 Apr 2015

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  • Residents of the Kabanga Protectorate Center and School in Tanzania attend a local Sunday church service. Residents with albinism make up roughly one-third of the center’s population—and 60 percent of them are children.
    130217_Sinclair_Albinism_002.jpg
  • Children spend time together after school in their dormitory at the Kabanga Protectorate Center and School in Tanzania. Residents with albinism make up roughly one-third of the center’s population—and 60 percent of them are children. Though violence against children and adults with albinism has been a problem, these kids face an even greater threat: Skin cancer kills 98 percent of Tanzanians with albinism before they reach the age of 40.
    130217_Sinclair_Albinism_004.jpg
  • Residents of the Kabanga Protectorate Center and School in Tanzania prepare lunch.
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  • A woman gives a haircut to another female resident while their children prepare for dinner at the Kabanga Protectorate Center and School in the northwest corner of Tanzania. The center is a safe haven for people with albinism, who face discrimination as well as serious health risks, like skin cancer and blindness. Originally a school for children with disabilities, the center now shelters about 80 people with the genetic disorder that hinders the body’s ability to produce pigment. That’s roughly one-third of its residents.
    130217_Sinclair_Albinism_005.jpg
  • Children at the Kabanga Protectorate Center and School in Tanzania share a meal outside their dormatories. Worldwide, albinism affects roughly one in 20,000 people. But in Tanzania, where rural gene pools are more isolated, it’s estimated as many as one in 2,000 have the disorder.
    130217_Sinclair_Albinism_006.jpg
  • Agnes Namhela gives a bath to her infant son Meshack. In 2008, killings within Tanzania’s albino community skyrocketed as witch doctors spread the myth that political success and personal fortune were guaranteed to those who consumed potions made with their skin, hair or bones. As a result, many families sent children with the disorder to Kabanga Protectorate Center and School – and in some cases, mothers accompanied their children.
    130217_Sinclair_Albinism_007.jpg
  • A child with albinism blocks her eyes from the sun while families go about their daily life in the dormitory section of the Kabanga Protectorate Center and School in Tanzania. Albinism can affect the eyes in multiple ways, and individuals with albinism can vary significantly in how much their eyes and vision are affected, with many being legally blind.
    130217_Sinclair_Albinism_008.jpg
  • Children play after school in their dormitory at the Kabanga Protectorate Center and School in Tanzania. Residents with albinism make up roughly one-third of the center’s population—and 60 percent of them are children. Though violence against children and adults with albinism has been a problem, these kids face an even greater threat: Skin cancer kills 98 percent of Tanzanians with albinism before they reach the age of 40.
    130217_Sinclair_Albinism_009.jpg
  • Students study in their dormitory at the Kabanga Protectorate Center and School in Tanzania. Many children with albinism suffer from failing vision, but at the center in Kabanga, some of their materials are in Braille.
    130217_Sinclair_Albinism_010.jpg
  • Free time at the Kabanga Protectorate Center and School in Tanzania.
    130217_Sinclair_Albinism_011.jpg
  • Children play after school outside their dormitory at the Kabanga Protectorate Center and School in Tanzania. Residents with albinism make up roughly one-third of the center’s population—and 60 percent of them are children. Though violence against children and adults with albinism has been a problem, these kids face an even greater threat: Skin cancer kills 98 percent of Tanzanians with albinism before they reach the age of 40.
    130217_Sinclair_Albinism_012.jpg
  • A child with albinism takes her plate to the dining hall as a storm comes in at the Kabanga  Protectorate School for the Disabled in Tanzania.
    130217_Sinclair_Albinism_013.jpg
  • Joshua Stanslaus, 19, relaxes after class with other boys at the Kabanga Protectorate Center and School in Tanzania. Stanslaus came to the Kabanga Protectorate Center and School when he was 12 because his vision was failing and he wanted to learn Braille. Due to safety concerns, he has not been home in five years to see his family, who live 350 kilometers away.
    130217_Sinclair_Albinism_015.jpg
  • Joshua Stanslaus, 19, relaxes after class with other boys at the Kabanga Protectorate Center and School in Tanzania. Stanslaus came to the Kabanga Protectorate Center and School when he was 12 because his vision was failing and he wanted to learn Braille. Due to safety concerns, he has not been home in five years to see his family, who live 350 kilometers away.
    130217_Sinclair_Albinism_014.jpg
  • Sisters who live and study at Kabanga Protectorate Center and School, braid each other’s hair. The safety they enjoy at the facility comes at a price: Many must live far away from their families.
    130217_Sinclair_Albinism_016.jpg
  • Persons with Albinism share the residence with other students with disabilities at the Kabanga Protectorate Center and School. The center receives some government aid but relies heavily on donations from charities.
    130217_Sinclair_Albinism_018.jpg
  • One of the Kabanga center’s young residents gets a little help bathing. Fear of violence and exposure to the sun have meant that some of the children have not been home to visit their families in years.
    130217_Sinclair_Albinism_017.jpg
  • Children read and learn during class at the Kabanga Protectorate Center and School in Tanzania. Residents with albinism make up roughly one-third of the center’s population—and 60 percent of them are children. Though violence against children and adults with albinism has been a problem, these kids face an even greater threat: Skin cancer kills 98 percent of Tanzanians with albinism before they reach the age of 40.
    130217_Sinclair_Albinism_019.jpg